Caleb is scheduled to go in and have his cecostomy tube replaced on Wednesday. Because of the nature of the tube it has to be replaced once a year.
Unlike the initial surgery the replacement of his cecostomy tube is only a day surgery. They snip off the current button, push the remainder of the tube into his bowel, and then insert the new tube into the existing hole. We have been told that the actual hands on time for the surgeon is less than 10-minutes.
Caleb is feeling quite nervous about the upcoming operation on Wednesday and said this at one of our recent appointments at the Alberta Children’s Hospital:
He would appreciate your prayer for Wednesday.
If you are unsure of what Caleb had done, and what the cecostomy tube is, then check out Caleb’s story about when he first got the cecostomy tube put in.
The Halcro Family will be praying for you Caleb! You are such a brave kid! I think it is GREAT that your mum and dad get a private concert! Lucky them!
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So glad everything went well Caleb! 🙂
I had a cecostomy tube inserted at the Children’s Hospital as well when I was 10…I am 24 this year. I’m glad you are sharing your story with others as not many know about this procedure. Hope everything went well 🙂
Thank you Mary Ann for sharing and I’m glad that you enjoyed reading about my son’s experience with his cecostomy tube. How long did you have the tube for? I know that my son is looking forward to when he can finally get his out …
I have been researching the cecostomy tube for my 6 year old son. He was born with Hircshprung’s Disease and battles with severe incontinence/constipation. Hoping to find out any information about the c-tube.
my daughter has a cecostomy in Nov 2012, also at ACH. Do you know about the camp in Bragg Creek for kids with a ostomy? it really helped my daughter to meet others in her situation. Here is the link for more information. http://ostomycanada.wordpress.com/uoac-ostomy-youth-camp/
That is very cool, that you for bringing that to our attention. Unfortunately we have since moved to Australia, but this would be great if we were still in Canada.